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Recommended Reading In Disability

Being Heumann
Harnessing Grief
Intelligent Love
Sincerely, Your Autistic Child

ON BEACON BROADSIDE

July 21, 2022

Nobody wanted long COVID on our collective pandemic Bingo card, but there it is. In her “The Daily Show” interview, OG disability rights badass Judy Heumann told Trevor Noah that the likelihood of his acquiring a disability, temporary or permanent, was statistically high. He took her statement as a threat in jest, but there’s truth in that for us....
May 24, 2022

It’s flying graduation caps season! We’re not post-pandemic, but graduates are embarking on a world stage that looks different from what it was two or three years ago. Some of those differences are alarming....
May 6, 2022

Bring out your flower bouquets and your brunch reservations! This Sunday is Mother’s Day, and we’re bringing the books to take you into the weekend and beyond. These books show how every kind of mother needs to be valued and supported in the catch-all societal stew we call the US. Mothers of color. Immigrant mothers. Mothers who become parents at a young age. Mothers separated from their families because of incarceration. Mothers challenging the medical establishment about misconceived notions of disability....
April 22, 2022

A Q&A with Terry Galloway | It’s a Hallmark film of a movie and, as such, has every Deaf cliché you can think of, including how hot Deaf people are in bed—although I’m inclined to perpetuate that myth. “CODA,” written by a hearing person and adapted by another hearing person, made the Deaf family the nominal villains: backwards, unthinking, unfeeling, selfish bumpkins. Until, of course, their hearing, singing savior of a child makes them see the error of their dumb ole Deaf ways....
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AUTHOR SPOTLIGHT

Judith Heumann

Judith Heumann

Judith Heumann is an internationally recognized leader in the Disability Rights Independent Living Movement. Her work with a wide range of activist organizations, NGOs, and governments since the 1970s has contributed greatly to the development of human rights legislation and policy benefiting disabled people.
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Being Heumann:An Unrepentant Memoir of a Disability Rights Activist

How We’re Silenced and the Power of Judy Heumann by Kristen Joiner

Judy Heumann isn’t nice.

Let me be clear.

Judy Heumann, one of the most transformative disability rights leaders of our time, is very friendly. Just take a walk around her Washington, DC, block. You’ll see that she’s on a first-name basis with everyone, from the doorman to the bus driver. But she is not nice.

For the past three years, I’ve had the privilege of waking up and imagining myself into Judy Heumann’s shoes. I co-authored her story, Being Heumann: An Unrepentant Memoir of a Disability Rights Activist, and as a nondisabled person, I’ve learned (and am still learning) an enormous amount about life with a disability. Equally important, despite having spent my entire career leading NGOs and working for social change, I’ve also learned an enormous amount from Judy about activism.

Judy Heumann became a quadriplegic from polio at the age of one and grew up in 1950s Brooklyn—an era known for locking disabled people in institutions, segregating them into inferior special education programs, and shunting them into sheltered workshops as a proxy for “employment.” People with disabilities, stigmatized and ignored, were considered a burden. In the face of this discrimination, Judy became an activist for disability rights. In 1977, she and others led 150 disabled people into the San Francisco Federal building and refused to leave until the Carter administration enacted the first civil rights legislation for disability. This protest, the Section 504 Sit-In, is recognized now as the longest takeover of a federal building in US history. It paved the way for the American Disabilities Act.

In other words, Judy is a badass.

Judy speaks the truth. Unapologetically. Now, in case you don’t know good-girl lexicon, speaking the truth unapologetically is not considered nice. Nice is what girls are asked to perform to be considered desirable. Nice girls are soft, compassionate and, above all, agreeable. Nice girls don’t complain, have needs, ask for what they want, say no, get angry, refuse to do something, or make a fuss. Nice girls apologize when they get the wrong drink order.

Nice, however, is not just about gender. It is about power. When interacting with people with less power, sociologists have noted, people with power expect the less powerful to display considerate, cooperative, and nice behavior. When they don’t, people with more power aren’t just surprised—they’re annoyed and, even more, threatened. Not acting nice toward people with power is an inherent challenge to their privileged status.

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